PostPoems Be Artistic. Be Creative. Be Inspired!

Amidst the onslaught of festive frenzy,
Neurodivergent minds reel a tempest here to sear.
Senses assaulted, relentlessly vexed,
Christmas chaos leaves us perplexed.


Masking's breaking, taking weight, a suffocating shroud,
Authenticity lost in the neurotypical crowd.
ADHD autism's ache, an adult's disgrace,
So, invisible struggles are present in this merry place.


Pain's persistent, pounding refrain, an endless score,
Fibromyalgia's claws, forever tore.
Spine curved like a question mark,
Vertigo's dance, a dizzying arc.


Poverty's clutch cuts deep, leave plans in disarray,
Opportunities vanish, like mist in the day.
Isolation, depression, chronic cursed alone,
In a world where bonds stretch, then are gone.


Trauma mars, leaves scars, rape's brutal seal,
cPTSD's tortures - terrors forever real.
Triggers flashbacks, a minefield within,
Clock tick-tocks, the night's wearing thin.


Passivity creeps in just like a mischievous elf,
A sinister spirit keeps us captive, steals our self.
Painfully forcing out a cry, on deaf ears they fall,
"You knew they wouldn't", it sneers, "more unanswered calls".


In despair's abyss, hope's flicker dies,
As the world rejoices, behind a joyful disguise.
Countless unseen battles and unheard cries,
Anguish, desperation, pain, do naked eyes lie?


To those who feign concern, a warning rings clear,
Your platitudes and neglect, a deafening sneer.
For in the depths of despair, a reckoning brews,
When the desperate depart, with nothing to lose.


In the sombre, silent night, when alienation reigns,
The psyche buckles, under the weight of its chains.
Remember, you who turned a blind eye,
The blood on your hands as the outcast dies.


So let the silence shatter, let the truth be known,
For the neglected and broken, forever alone.
May their memory haunt, may their absence resound,
A damning indictment, of the help never found.


Silently in the night, isolation's doom looms,
For those left to rot, in desolation's tombs.
A scourge on false kindness, on empathy's dearth,
As the forgotten depart, from this merciless Earth.


A warning to those who still pretend to care,
Of the anguish hidden, behind festive despair's lair.
Family friends forsaken in desolation's night,
Cast aside, ignored as time ticks on, year's plight.


In the silent night, a dirge ascends,
For those struggling, lost at the year's end.
Society's apathy, an unpalatable bitter pill,
Washed down with tears, we fade away against our will.


Let the silence break; let the truth be told,
Of the torment endured, the agony untold.
In summer's sweat, a reckoning should rise,
Power imbalances now, no escape our fate's demise.


May our ghosts haunt the whole season bright,
Reminding us of those for whom this time's a blight.
In the season's glare, coalescing shadows reign,
Numerous reasons, curses feeding this pain.


A moment of stillness, amidst the hurricane,
A flicker of self, in the endless pain.
Battered and bruised, yet still we stand,
In defiance of a world, that refuses to understand.


Whilst it is true, many times I have tried,
But for my animals, it is on me that they rely.
As night follows day and day follows night,
Dark forces frantically fighting, stealing my fight.


Hope's a medicine, both a curse and a sure cure,
Healing if repeatedly given - the source pure.
Decidedly dangerous, deadly, dangled as a prize,
Breaking faith's wraith, soon you and society they'll despise.


A pox on ableism, on empathy's lack,
As we vanish slowly, our lives off-track.
In the silent night, our requiem it plays,
The forgotten ones, left on birthdays and holidays.

The biblical story of David and Goliath in 1 Samuel 17 often serves as a powerful metaphor for conquering seemingly insurmountable odds. At least, that is how it has abundantly resonated with me throughout my life. Especially as I was named David and growing up in an Irish Catholic family, I constantly encountered these timeless biblical tales at school, home, and church — their influence permeated every aspect of my life.

I have never escaped that metaphor and comparison with every battle, and I have had more than most. From escaping an abusive family and living on the streets to being sent to multiple uncaring foster homes. To bullying from family, fellow students and mental health staff following my first suicide attempt (the nurse instructed me and a fellow patient how to slit our wrists/arms correctly). When I was hospitalised and in rehab for eight years after a man ran a red light and almost killed me. The list keeps on going. My most recent battle has been going on for over seven years. Yet still, I hear that metaphor, sometimes from casual observers or even from myself. It is exhausting and, frankly, dangerous. 

The issue with applying this comparison to modern situations becomes profoundly problematic, especially when addressing toxic positivity, disability fetishisation, and the deep-rooted challenges individuals face when confronting systemic biases. Let us explore these pressing issues more broadly while interweaving the essential elements of disability experiences, energy management, allyship, and the ongoing necessity for collective action. 

Toxic Positivity and the Disability Experience

When people resurrect the David and Goliath narrative to promote the notion that anyone can overcome any obstacle simply through positivity and perseverance, it can:

• - Invalidates Real Struggles: This narrative can dismiss the fundamental and systemic barriers individuals face, particularly those with disabilities.
• - Oversimplify Complex Issues: This approach reduces complex social and institutional problems to simple personal challenges, ignoring the need for structural change and collective action.

The “Spoon Theory” and Energy Management

For individuals with disabilities, the concept of “spoons” as a metaphor for energy is crucial:

• - Limited Resources: Each day starts with a finite number of “spoons,” representing available energy.
• - Prioritisation: Individuals must carefully allocate their energy, often making difficult choices about which activities to pursue
• - Invisible Challenges: This energy management is often invisible to others, leading to misunderstandings and unrealistic expectations.

Disability Representation and Institutional Barriers

Using the David and Goliath story in the context of disability representation can:

• - Exploit Disabled Individuals: It can frame disabled people as “heroes” for merely existing or achieving everyday tasks, which can be patronising and dehumanising.
• - Ignore Systemic Barriers: This approach shifts the focus from addressing systemic ableism and creating inclusive environments to celebrating individual triumphs over adversity.

https://www.ted.com/talks/stella_young_i_m_not_your_inspiration_thank_you_very_much?subtitle=en

Unrecognised Challenges in Institutions

• - Fluctuating Energy Levels: Institutions often fail to recognise the variable nature of disabilities, expecting consistent performance.
• - Lack of Responsiveness: When systems are unresponsive to the needs of individuals with disabilities, it can lead to frustration and disillusionment.
• - Pressure to Surrender: Silence or indifference can unintentionally pressure individuals into giving up their fight for accommodation and recognition.

Confronting Institutional Biases

When individuals confront institutions with long-established histories of discrimination, comparing their struggle to David and Goliath can:

• – Misrepresent the Nature of the Challenge:Institutional biases are deeply embedded and multifaceted, unlike the clear, singular adversary in the biblical story.
• – Promote Individualism Over Collective Action: This can imply that change is the responsibility of a lone “hero” rather than a collective effort.
• – Overlook the Need for Structural Change: The narrative can obscure the need for systemic reforms and policy changes.

The Importance of Collective Action

• – Amplifying Voices: Uniting strengths can amplify the message that everyone deserves support and acknowledgment.
• – Policy Advocacy: Collective efforts are crucial for advocating policies that recognise difficulties and actively work to dismantle barriers.
• – Building Inclusive Environments: Together, we can work towards creating more responsive and inclusive institutional frameworks. 

Allyship and Its Role in Systemic Change

Allyship plays a crucial role in advocating for systemic change. Allies can support individuals with disabilities by:

• – Educating Themselves: Understanding the challenges faced by individuals with disabilities and the language of inclusivity (Lovedisabledlife, 2023).
• - Listening and Learning: Amplify the voices of disabled individuals and be open to feedback (Sinclair, 2023).
• – Advocating for Accessibility: Supporting changes to inaccessible environments and practices in communities and workplaces (Forward Ability Support, 2023).
• - Practising Empathy: means recognising the strength and resilience of individuals with disabilities rather than feeling sympathy (Lovedisabledlife, 2023). It is crucial in advocating for systemic change, as it promotes understanding and respect for individuals with disabilities, their experiences, and their needs.

Examples of Successful Collective Actions

Highlighting real-world successes can inspire others and demonstrate the power of community efforts in challenging institutional biases:

• – Disability Advocacy in Europe: Research has shown that successful campaigns often utilise the lived experience of disabled experts, engage internal allies, and maintain flexible strategies (Coveney, 2023).
• – Australian Disability Rights Movement: The unification and organisation of disability advocates in 1981 led to significant advancements in independence, inclusion, and equality (Commons Library, 2023).

Individual Considerations

When making comparisons, it is essential to evaluate each case’s merits. Factors such as the type of disability, financial resources, medical, social, and family support systems, personal life commitments, and dependents all influence the individual’s experience and must be considered.

The Complexity of Individual Experiences

When examining the challenges faced by individuals with disabilities in institutional settings, it is vital to recognise that each case is unique and should be considered on its own merits. The David and Goliath metaphor, while powerful, can oversimplify these complex situations, underscoring the need for a more nuanced approach.

Factors Influencing Individual Experiences 

Several factors can significantly impact an individual’s ability to navigate institutional barriers:

• – Type and Severity of Disability: The nature and extent of a person’s disability can significantly influence their daily experiences and challenges (Nario-Redmond et al., 2013). Even if two identical twins had the same diagnosed condition, the specific manifestation and impact can vary significantly between individuals.
• – Financial Resources: Access to economic resources can significantly affect an individual’s ability to seek accommodations, medical care, or legal support (Mitra et al., 2017). Access to other essentials, like food, shelter, water, and clothing, also significantly affects an individual’s ability to manage their condition and navigate challenges.
• – Medical Support: The quality and availability of medical care can vary widely, impacting an individual’s overall health and ability to manage their condition (Krahn et al., 2015). Some may have better insurance coverage, the ability to pay for treatments, or access to specialists than others.
• – Educational Background: An individual’s level of education and familiarity with institutional systems can influence their ability to navigate complex bureaucracies (Lindsay et al., 2018).
• – Social and Family Support: Strong support networks can provide emotional, practical, and advocacy assistance, which can be crucial in navigating institutional challenges (Tough et al., 2017). The challenges can also lead to fractures within and between advocates and family members’ causing some or many to abandon support.
• – Personal Life Commitments: Responsibilities such as caregiving for dependents or maintaining employment can affect an individual’s capacity to engage in advocacy efforts (Anand & Ben-Shalom, 2014). Each person has their own set of personal responsibilities, such as dependents, work obligations, or other life commitments that add complexity to their situation. These factors can impact the time, energy and resources available to manage their condition or pursue goals.
• – Individual differences in coping mechanisms and resilience: People have different psychological and emotional capacities for dealing with adversity. What may seem manageable for one person could be overwhelming for another due to differences in personality, past experiences, or mental health.
• - Invisible challenges: Many factors that influence an individual’s experience are not readily apparent. As our community says (paraphrased)
• 
  
• “This energy management is often invisible to others, leading to misunderstandings and unrealistic expectations.”
• 
  
• – Intersectionality of challenges: Individuals may face multiple, overlapping forms of discrimination or disadvantage beyond their primary condition. This intersectionality can compound difficulties in ways that are unique to each person. 

By making direct comparisons without considering these nuanced factors, we risk oversimplifying complex situations and potentially invalidating individuals’ real struggles. As the response emphasises, it is essential to consider each case on its own merits rather than comparing individuals broadly, even if they face similar challenges.

TL;DR Avoiding Unfair Comparisons

It is important to note that comparing individuals facing similar challenges can be problematic and unfair. Even when two people have the same type of disability or are confronting similar institutional barriers, their circumstances and resources may differ significantly.

The Danger of Comparison

• – Invalidating Individual Struggles: Comparisons can minimise each person’s unique challenges.
• – Creating Unrealistic Expectations: Holding someone to another’s standard of success or progress can be demoralising and counterproductive.
• – Overlooking Intersectionality: Individuals may face multiple forms of discrimination or disadvantage simultaneously, which can compound their challenges (Crenshaw, 1989).

The Role of Allyship and Collective Action

Given the complexity of individual experiences, the role of allies and collective action becomes even more crucial:

Effective Allyship

• Allies can support individuals with disabilities by:
• 
  
• – Recognising Diversity: Understanding that the disability community is not monolithic and experiences vary widely (Nario-Redmond et al., 2013).
• – Providing Tailored Supports: Allies understand the importance of offering assistance based on each individual’s well-defined needs and circumstances (Catalyst, 2021).
• – Advocating for Flexible Policies: Pushing for institutional policies that accommodate various needs and situations (Lindsay et al., 2018).

Collective Action and Systemic Change

While individual experiences differ, collective action remains crucial for systemic change:

• – Sharing Diverse Perspectives: Combining varied experiences can help create more comprehensive and inclusive solutions (Krahn et al., 2015).
• – Building Coalitions: Uniting diverse groups can amplify advocacy efforts and increase pressure for institutional change (Nario-Redmond et al., 2013). 
• – Promoting Universal Design: means advocating for environments and policies that are accessible and beneficial to all, regardless of individual circumstances (Steinfeld & Maisel, 2012).

In conclusion, metaphors like David and Goliath once thought of as inspiring, are, in reality, anything but. They serve only as a tired and overused trope to sell flights of fancy in action films and by news outlets to try to cash in on ratings. Even when used cautiously and in context, it can still cause much harm. Recognising the complexity of individual experiences, avoiding unfair comparisons, and focusing on collective action and allyship are vital to effectively addressing institutional barriers. By embracing this nuanced approach, we can work towards creating more inclusive and equitable institutions for all.

References

Anand, P., & Ben-Shalom, Y. (2014). How do working-age people with disabilities spend their time? New evidence from the American Time Use Survey. Demography, 51(6), 1977–1998

Catalyst. (2021). Allyship and Advocacy at Work: 5 Key Questions Answered. Retrieved from https://www.catalyst.org/2021/10/14/allyship-advocacy-questions-answered/

Commons Library. (2023). The History of Campaigns in Australia by People With Disability. Retrieved from https://commonslibrary.org/the-history-of-campaigns-in-australia-by-people-with-disability/

Coveney, C. (2023). Disability Advocacy Research in Europe. European Disability Forum.

Crenshaw, K. (1989). Demarginalising the intersection of race and sex: A black feminist critique of antidiscrimination doctrine, feminist theory and antiracist politics. University of Chicago Legal Forum, 1989(1), 139–167.

Forward Ability Support. (2023). How to be a disability ally. Retrieved from https://fas.org.au/how-to-be-a-disability-ally/

Krahn, G. L., Walker, D. K., & Correa-De-Araujo, R. (2015). Persons with disabilities as an unrecognised health disparity population. American Journal of Public Health, 105(S2), S198-S206.

Lindsay, S., Cagliostro, E., Albarico, M., Mortaji, N., & Karon, L. (2018). A systematic review of the benefits of hiring people with disabilities. Journal of Occupational Rehabilitation, 28(4), 634–655.

Lovedisabledlife. (2023). Actionable Tips for How to Be a Supportive Disability Ally. Retrieved from https://www.lovedisabledlife.com/blog/actionable-tips-for-how-to-be-a-supportive-disability-ally

Mitra, S., Palmer, M., Kim, H., Mont, D., & Groce, N. (2017). Extra costs of living with a disability: A review and agenda for research. Disability and Health Journal, 10(4), 475–484.

Nario-Redmond, M. R., Noel, J. G., & Fern, E. (2013). Redefining disability, re-imagining the self: Disability identification predicts self-esteem and strategic responses to stigma. Self and Identity, 12(5), 468–488.

Sinclair, T. (2023). Embracing Human Spirit: A Perspective on Allyship for Intellectual Disabilities. Retrieved from https://www.linkedin.com/pulse/embracing-human-spirit-perspective-allyship-tristan-sinclair

Steinfeld, E., & Maisel, J. (2012). Universal design: Creating inclusive environments. John Wiley & Sons.

Tough, H., Siegrist, J., & Fekete, C. (2017). Social relationships, mental health and wellbeing in physical disability: A systematic review. BMC Public Health, 17(1),
414.

Amidst the tempest's rage and lashing sea,

I stand, bound to the mast, chained, but free.

A vessel of dreams, once sturdy and grand,

Now sinks beneath the weight of poverty's hand.

The storm clouds gather, dark and foreboding,

Apathy's embrace, the government's loathing.

Oh, how they revel in our desperate plight,

As we drown in the depths of endless night.

The chains that bind me, etched with sorrow's ink,

A metaphor for the burdens that I think.

Struggling against the tides of destiny,

But my voice, a whisper, lost at sea.

Invisible hands, once held in trust,

Now clenched in fists, the ties of disgust.

The promises broken, illusions shattered,

Leaving wounds that bleed, unhealed, and battered.

Amidst the fields, the forests, and the streams,

Where once I roamed, a child of nature's dreams,

I see a sight that breaks my heart in two,

Abject poverty, homelessness, and hunger too.

The government stands by their eyes don't care,

Inaction and neglect, its cruellest affair,

In the city's alleys and darkened streets,

The homeless suffer, only pain at their feet.

Hunger, pain, and depression take their toll,

On those who cannot flee this endless hole,

And in the night, come whispers of suicide,

To end the pain, they can no longer hide.

And yet they rise each morning, with a will,

To face another day, and all that it will bring,

With a courage born of desperation, so strong,

A strength that nature's children have always known.

So let us not forget the homeless,

The poor and hungry, with pain in their soul,

For in their suffering, we see,

The toll that life can take, on the weakest and the bold.

And let us demand from those in power,

Action, not indifference, to this plight,

For in our collective silence, we see,

The cost of government inaction, day and night.