My son now nine, asks me questions,
Straight, upfront, disturbing
I have no answers he can understand
I wish I could tell him
That he’d be normal one day
And the incontinence and the smell
Of pampers will go away
I am an optimist and
Have faith in GOD
And I tell him He will make him
Better one day. Look after him
Long after I am gone.
I still remember the choice I made
Despite being aware of all the challenges
Life would bare
I have seen him crawl on his belly
As his legs were too weak to bear the weight
And I have witnessed him
Stand up and play
I have learnt more from him
Than I could ever teach
Courage, patience, will power
And the desire
To achieve tasks beyond his reach
At night as his mother
Massages his aching legs, finds painless blisters
On numb feet
It hurts.